The researcher highlighted that during her visit, from November 17 to today, several institutions, particularly governmental ones, informed her of a lack of statistical data on people with albinism in Portugal.
After meeting with various Portuguese ministries and several non-governmental organizations (NGOs) in Lisbon, Coimbra, and Porto, the independent expert concluded that the legislative and policy framework governing the rights and welfare of people with disabilities—which includes those with this condition—is sufficiently comprehensive in Portugal and reasonably aligned with international standards.
Citing an example, she noted that Article 71 of the Portuguese Constitution states that people with disabilities enjoy “full rights and are subject to the duties” enshrined therein, with exceptions for those they are unable to perform or fulfill.
Meanwhile, Miti-Drummond noted that she found no specific provision on albinism within the Portuguese legal and policy framework, but that “various governmental entities” assured her that the legislation was broad enough to encompass individuals with this condition.
In discussions with people with this disability in Portugal, some confided in the activist that they have attempted to conceal their condition by dyeing their hair and eyebrows to avoid social stigma.
Finally, the visiting attorney offered several preliminary recommendations to the Portuguese government, including the development of a data collection system; the inclusion of sunscreen on the list of essential medicines for people with albinism; a review of adaptations in schools and workplaces to ensure proper access and clarity for individuals with albinism; the development of awareness campaigns on the subject in schools and the health system; and support for NGOs working in the health sector and training for health professionals to meet these individuals’ needs.
For the expert, this visit to Portugal occurred at a time when increasing attention is being given to the human rights situation of people with disabilities, especially those with albinism, worldwide.
While noting “commendable progress,” she stated these individuals continue to face discrimination, abuse, and social stigma.
Furthermore, due to climate change, there has been an increase in ultraviolet (UV) rays, which particularly affect people with this condition, as they lack melanin in their bodies, she warned.
Consequently, they are more susceptible to cases of skin cancer or other injuries caused by solar rays, she cautioned.
The full report will be presented in March 2027 to the United Nations Human Rights Council in Geneva, Switzerland.
